Deep Breath & A Date

Just a quick note with an update on Eisley.  Today we met with the neurologist.  She was wonderful, listened to all of our descriptions of the recent events and even asked what we hoped to gain from the visit.  The tremors that have started to fade, she classified as infant shudders, something that comes at this age and should go away by the age of 12-15 months.  Nothing to worry about - hurray!

After hearing our story and asking more questions, she did decide that Eisley likely has had 3 seizures and has the abnormal EEG.  These together bought her the label of epilepsy.  You think people look at you sadly when learning your child has DS?  Try adding epilepsy to the mix.  To us it really hasn't changed anything, I've tried looking from a new perspective, but I think we are being realistic and not in denial.  Eisley's seizures have been very minor, only a couple minutes at the most. 

Seizure precautions focus on making the child safe if a seizure should come on, bike safety, water safety - stuff that doesn't really apply to an infant.  Dr Wright was comfortable not prescribing medications since the seizures have been mild and infrequent.  If there should be additional ones within a close time frame, we'll have to rediscuss the med issue.  Overall we left feeling much better about the situation.  Miss Eisley has overcome much more than this!

A shot of the ECMO room when Eisley was 9 days old, they were preparing to take her off ECMO, so the room is actually cleaned up a bit to make room for the surgical team coming in.  Each time we visited Keira would count the IV pumps, she figured less equipment meant Eisley was getting better and one step closer to home.

Since Grandma came over to babysit we took advantage of that and enjoyed a quiet lunch as well as some shopping.  For this time, I'm glad we didn't know about the new Kids Camp at the hospital for siblings to play during appointments!